Can I be super transparent here for a minute? Since I’m not normally much of a complainer, I will keep this short, as I like to try to keep my focus on the positive as much as I can! But these past couple of days have been pretty tough, and writing is my outlet. I’m better with this kind of info when I’m typing rather than talking, as I tend to get misty and make people feel awkward when I talk about this stuff in person.
As the parents of a little boy with profound bilateral sensorineural hearing loss, Price and I have done all we can to be as proactive as possible in getting our baby on the path to hearing and speaking as well as possible with his condition.
His condition is severe. It took the diagnosis of his hearing loss being “profound” for me to actually realize the magnitude of that word, and Dempsey’s case. Profound. Very great. Severe. It’s an extreme condition.
To keep a long story very condensed, we felt like we were in the absolute best care possible, due in large part to (1) our fabulous audiologist (who happens to be the one who found out that Dempsey was profoundly deaf on January 3) and (2) our amazing early interventionist who our entire family simply adores. These two were the two we have been meeting with most frequently throughout our journey thus far so of course we have developed relationships with them! Well, on Monday we found out that we are losing both of them. Our audiologist is no longer at UMMC (we don’t know yet where she’s going), and our early interventionist and his precious wife are moving this summer so she can take what sounds like a dream job on the west coast. We found all of this out in the span of about five minutes.
I cried. And cried.
I know this is only a temporary setback, as I’m sure whoever we see from here forward will be so capable and qualified and sweet and wonderful with our baby boy! But man, we had just fallen in love with these two precious souls. It’s a roundhouse kick to the gut, for sure.
I know scripture tells us that all things work together for good for those who love Him. Romans 8:28. (Accidentally quoted Jeremiah 29:11 originally, which is also great! But Romans is the correct ref. Thank you, Mama, for catching!) Through all of this, I have fallen even deeper into love with Him, so I am certain it will all be good in the long run. I’m not scared about the future. Still not worried about the Dempsey Bean or his chances of being super successful in this life, but this all still sucks. Plain and simple. It just sucks.
Thankfully we get to continue seeing our early interventionist for a couple more months. I pray that whoever is hired to replace him is just as amazing! And although I dearly miss our audiologist, I know it will all work out. It will be fine. I plan to keep up with her! 🙂
It helps me get through the junky mood I’ve been in the past couple of days when I can write it out. So thank you for letting me say how I feel “out loud” to get it off my chest 🙂
We have a fantastic army of family and friends praying us through this voyage. I still feel strong and thankful and blessed by so many things and people. Sometimes it’s okay for a girl to just take a few minutes to be bummed, right?! 🙂
For anyone interested in keeping up with our journey through my blog posts, I just created a new “Dempsey’s Ears” category on my sidebar where I’ll file all of the posts like these. You can check it out to view our past updates if you want 🙂 It is my prayer that we are able to encourage others through this unique path!
To end this update on a high note– how sweet are these pictures that my beautiful friend Lauren took of me and Dempsey when we went to visit her in Florida last weekend?! If you’re in the Pensacola area and need some pics taken, let me know and I’ll share her info! She’s amazing! These pictures definitely make me smile 🙂
Thank you so much for reading today. It means so much.
Lots and lots of love to you! XO